Keywords
Elderly Care Manager, Community, Older people, Health needs, Quality of life
This article is included in the Sociology of Health gateway.
This article is included in the Health Services gateway.
Elderly Care Manager, Community, Older people, Health needs, Quality of life
An aging society is defined as one in which those who are 60 years of age or older make up more than 10% of the whole population of the country. In Thailand, the proportion of elderly persons in society has continuously increased as the birth rate continues to fall, and people live longer. By the year 2022, the number of Thai people who are 60 years of age and above will increase to 20 million, or 20% of the whole population (The National Statistical Office of Thailand, 2019). This change in the population characteristics is predicted to result in a dependency ratio, with regard to the elderly, will rise from 47.4% in 2019 to 99.8% in 2037 (Foundation of Thai gerontology research and development institute, 2020).
An elderly person faces both physical and mental changes. The immune system is weakened, resulting in generally more health problems than those in other age groups. It is also found that most aged individuals have chronic illnesses, especially dementia, which affect their daily lives and their quality of life (Barbe et al., 2018). As their ability to take care of themselves decreases, and as they are left alone (while the rest of their family members go out to work), people of advanced age often suffer from depression. Additionally, the environment that they live in is unsuitable to physical changes. experienced by elderly individuals.
A long-term care system is extremely necessary for an aging society. The World Health Organization (WHO, 2020), has stipulated that long-term care is an indispensable part of the health system of society. There needs to be care activities by both formal caregivers, who are public officials, and medical practitioners in their areas, and informal caregivers, who are members of the family, friends and neighbors (Laranjeira, 2020). Important factors for the success of the long-term care system are the existence of supporting policies and regulations, a good, systematic, structure of services, channels of access to services, funding from various sources, flexible services and the ability to provide services to the residents of the older, participation from the community and relevant networks (Canadian Foundation for Healthcare Improvement, 2020). An Elderly Care Manager (ECM), at the level of the community, from the community itself, can play the role of a coordinator who addresses the various factors, and finds different ways to manage and solve different problems in response to the individual needs of the elderly in different cases. It may be said that the goals of care are to ensure that the basic factors in the daily lives of the older are meaningfully addressed, whether from the point of view of their expectations, or in terms of the existing standards of care (Yodpet, 2009).
Thus, the researchers were interested in exploring the health problems of the aged in a community, and that through conducting group discussions, getting the opinions of the relevant persons who are responsible for the care of the elderly in the community, and to investigate the outcome through ECM coordination. The aim of this research was to find out the outcomes when informal care in the community is carried out by members of the community themselves.
This is mixed method research, using both quantitative methods for exploring the difficulties faced by the elderly and outcomes due to the ECM, and qualitative methods, based on focus group discussion. The relevant persons involved in elderly care, at this particular time, carried out their activities in Kruewan community1, city municipality, Maha Sarakham Province. The data collection in the field was carried out over a period of six months. The study was separated into three phases, each with a specific objective. The three phases were: 1) to explore the difficulties faced by older people in the community using an interview form (Ploylearmsang, 2022a) that the researchers had designed, and a trained team of researchers who used this form to collect the necessary information; 2) to conduct focus group discussions with the relevant persons involved in the system of long-term care for the elderly in the community. They consisted of representatives from the municipality, spokespersons of the community leaders, envoys of the older from the community, Village Health Volunteer (VHV), and health practitioners in the area; and 3) to study the two months short-term outcomes that were enhanced by two trained volunteer ECMs who coordinated with health-related agencies to provide contributions or interventions according to the needs of elderly, made at least two home visits over a period of two months, and informed the elderly about the diseases and some supportive help for improving quality of life of the elderly.
The three phases of the research had three different population and sample groups, as follows:
1) The population in the first stage consisted of the elderly persons in Kruewan1 community. The subjects, consisting of both males and females, were ≥60 years on the day of the survey. They were also residents of the Kruewan1 community throughout the three months period, and were willing to provide the data. The results were calculated based on the size of the sample group for the survey, p=ratio of aging patients with chronic illnesses–53% (Gray, Hahn, Thongcharoenchupong, 2016) applying the Cochran formula (1953) as follows:
n=the minimum number of sample groups needed
Zα/2=constant under α error where α=0.05 then Zα/2=1.96
e=acceptable error, equivalent to 10% or 0.1
The research team conducted an interview of 45-60 minutes’ duration for each elderly person.
2) The population in the second phase consisted of relevant persons involved in the health care of the elderly in Kruewan community1. Those who were able to give evidence, and willing to participate in group discussions, contributed to the investigation and ECM training. There were ten individuals in total, consisting of one community leader, one representative of the elderly, three VHV, one municipality official in charge of the maintenance and improvement of housing conditions, and four health personnel who had worked in the research area: a doctor, a nurse, a pharmacist, and a physiotherapist.
3) The population in the third phase consisted of the elderly who participated in phase 1. Samples consisted of elderly persons who had made a request for healthcare and were willing to accept assistance from ECMs. The sample size was calculated using the effect size of paired data on quality of life.
n = [(Zα/2 + Zβ)σ/Δ]2 when Zα/2 = 1.96, Zβ = 0.84, and Δ of EQ 5D = 0.15 (Comans et al., 2013), n=13.9 or 14. Fourteen elderly persons that fitted the inclusion criteria were recruited. The exclusion criteria were: 1) patients that ECMs were unable to access or collect the data, because they had moved out of the area or passed away during the data collection period; 2) those that requested for discontinuation.
1. An interview form and a consent form were used for collecting information regarding issues faced by the elderly in the community.
2. The questions were framed by the investigators for the group discussion. The subject matter included their view on ECM, the characteristics and roles of the ECM. The questions were checked for content validity by an expert on development of survey instruments and a local authority on health care for the elderly. The interview form was tested for reliability on ten elderly persons in other localities.
The 10 steps for the research were: 1) submission of a human research ethics form to the Ethical Committee of xxxxx University with the ethical approval number xxxxx submission of a letter of request for assistance to Burapha primary care unit (PCU) in order to collect research data from populations in Kruewan 1 community; 3) submission of a request for permission to access the study area to the Maha Sarakham city municipality; 4) conducting a field survey of older people in order to find out about their situation and any problems affecting their health; 5) collection of data by tape recorded interviews, analyzing the results, and categorizing the problems and the health needs of people of the elderly; 6) leading a group discussion in order to exchange information on the conditions and difficulties faced by the elderly in the community, and recording of opinions held by members of the community about the characteristics, roles and responsibilities of the ECMs; 7) gathering of evidence from group dialogues, identification of the subject matters discussed, and analysis of the resultant evidence; 8) categorization of the difficulties faced by the elderly based on the information obtained from the first phase of the survey, and training ECMs to coordinate with specific personnel or agencies who have the ability to resolve individual problems, together with suggestions and solutions to be applied by the relevant agency; 9) collecting paired data for the supportive effects of ECMs’ coordination on short-term outcomes among the elderly; 10) summarizing data and providing feedback to the community.
Approval IRB protocol/human subjects approval numbers: Faculty of Pharmacy Mahasarakham University Ethics Board (REB: PD 014/2014).
The relevant general and health information of the participants during the first stage were described by descriptive statistics such as frequency, percent, average, and standard deviation. The paired data of pre-post supportive effects including score of disease knowledge (score 0-5) and quality of life (score 0-1) were analyzed by using Wilcoxon signed ranks tests.
According to the information from Burapha Primary Care Unit (PCU), the population of Kruewan1 community consisted of 1,006 individuals. There were 149 elderly persons (9.34%) and 94 elderly persons were willing to participate in this survey, a response rate of 63.1%. There were 55 individuals whose information could not be obtained as they had moved, were not home at the time of the survey, or had passed away. Most of the older people in the Kruewan1 community were female (74.47%). As shown in Table 1, 53 individuals (56.38%) were 60-70 years old. 51 older persons (54.26%) were married and were together. In this community, there were forty aged persons (42.55%) who were widowed. The education level of most participants was at primary school level (93.62%). There were seventy-nine elderly persons (84.04%) who were no longer in any occupation. Eighty-two of the elderly had regular caregivers (87.23%), but as many as twelve elderly persons (12.77%) had no regular caregivers.
The status of the elderly in Kruewan1 community is shown in Table 2, and fifty-seven (60.64%) had underlying medical conditions. The three most common underlying diseases were high blood pressure (38.30%), diabetes (32.98%), and hyperlipidemia (19.15%). Other medical conditions which were found were: emphysema, migraine, hemorrhoids, Parkinson’s disease and partial paralysis. Five individuals were discovered to have them. Three were identified as having Alzheimer’s disease.
Health needs of the older people in the community
From the interview about the need for health services among the aged in the community, we concluded that there are seven main needs, as follows: (1) income-generating occupations, (2) commodities for daily living, such as blankets, (3) monetary support, (4) basic knowledge on diseases and medication, (5) equipment to increase their quality of life, such as canes, walkers, and wheelchairs, (6) social activities such as aerobic exercise groups, (7) advice and suggestions to manage their mental health and depression after the loss of loved ones.
Various results (Ploylearmsang et al., 2022) were derived from the group discussions conducted among ten relevant persons who were involved in health care for the elderly (see Table 3). They consisted of five members of the community who were involved with the elderly, and five personnel from the public sector who were health care providers for elderly persons. The group discussion was held for them to give their opinions on the health problems faced by the elderly, and the characteristics, qualifications and work methods of the ECM. The opinions about the ECM in the community were shown in Table 2.
Data was obtained, over a two-month period, from fourteen elderly persons who were willing to participate in this research, during which two trained volunteer ECMs coordinated with health-related agencies which could provide contributions or interventions according to the needs of the elderly. The ECMs made home visits during the two months’ period. Five participants were missing during follow up, two elderly persons were reported as dead, and three had moved to their children’s homes in other areas and thus the response rate was 64.3%. Table 4 shows the activities that ECMs performed for the elderly in their community, and Table 4 shows outcomes of these activities among the elderly after the two-month period. The trend in terms of increased quality of life (EQ-5D-5L) among the elderly from pretest to posttest was 0.80±0.16, 0.82±0.15 (p=0.059), while that for knowledge about diabetes and hypertension increased significantly from 4.11±0.60 to 4.56±0.53 (p=0.046) and 4.11±0.60 to 4.89±0.33 (p=0.008), respectively.
Aging’s outcomes | Mean±SD (n=9) | p-valuea | |
---|---|---|---|
Pre-test | Post-test | ||
Diabetes knowledge (Score=0-5) | 4.11±0.60 | 4.56±0.53 | 0.046* |
Hypertension knowledge (Score=0-5) | 4.11±0.60 | 4.89±0.33 | 0.008* |
Quality of life (EQ-5D-5L) (Score=0-1) | 0.80±0.16 | 0.82±0.15 | 0.059 |
A study of the development of systems for long-term care service in the community, found that 67.6% of the elderly were female (Loskultong & Sritanyarat, 2012). Research investigating health problems, issues with the use of medications, and the behaviors of the elderly in the community of Phramongkutklao Hospital, with regard to the use of medications, also found that most of the residents of advanced age were female (Naiyapatana, 2010). The results of the current study are consistent with the two studies mentioned i.e. elderly female would be a group of concern in the future. It was found that the health problems of the elderly were chronic diseases including hypertension, diabetes, hyperlipidemia, gout and rheumatoid arthritis, heart disease, and asthma. Some of the elderly had more than one underlying medical condition. This is consistent with the findings of the survey on the six most common chronic illnesses suffered by people of advanced years in 2019, which was conducted by the National Statistical Office. It is also consistent with the study from home visits and the management of left-over medications in elderly persons with chronic illnesses. It was found that the five most common chronic illnesses, with the left-over medications, among the aged were high blood pressure, diabetes, stroke, hyperlipidemia, and cardiovascular diseases, (Chantra & Moungkan, 2020) Studies carried out on the development of systems for long-term care services for the elderly in the community found that the most common morbidity suffered by the elderly was high blood pressure (Loskultong & Sritanyarat, 2012; Naiyapatana, 2010). Additionally, the results of this study demonstrated that most of the elderly had more than one underlying condition, and long-term medications use was important.
Elderly persons, living without caregivers was one of main factors for the aggravation of health problems amongst elderly in Kruewan1 community. Most of their children worked in different areas, and thus the elderly had to live alone, without a caregiver. Physical changes experienced by advanced age also affect their health. The survey found problems relating to aches and pains in joints, knees and body. Additionally, there were problems with balance and dizziness, eyesight and visual acuity, oral and dental health, and the excretory system and this is similar to the findings of a study in Thailand (Jarutach, 2007). A large number of the elderly have orthopedic illnesses, and illnesses linked to joints/muscles/ligaments, and most elderly persons have problems with visual acuity. However, in terms of mental health, most of the elderly people in this study did not suffer from depression and this is consistent with the situation in Thailand as a whole where it was found that Thai elderly persons had average mental health scores of 32.3 out of 45 points – which was within the normal level of the mental health (Yiengprugsawan et al., 2012).
Environmental factors may also play a role in the health problems of the elderly. This is because ideal environments for the elderly vary according to their individual limitations. If an environment allows an elderly person to help themselves, the consequence may be positive effects on such a person’s mental health. They can take pride in being able to fend for themselves, and do not feel that they are burdening their children. Research has been shown that elderly persons with mobility problems and whose difficulties have been managed, can move around more comfortably, and are able to perform more movements by themselves (Tongsiri et al., 2017). Similarly, it has been found that elderly persons living in urban areas need to use equipment, which are safe and not complicated to use, to assist with their mobility (Lertpradit & Jarutach, 2020).
Teaching the elderly to have basic knowledge about illnesses and medications is important. Awareness about such issues needs to be created among them and their caregivers in order to prevent health problems that may result from a lack of such information. A study on the management of left-over medications among the elderly with chronic illnesses, found that the elderly needed knowledge with regards to use of medications, and the methods to use them appropriately. Most of the elderly tend to forget to take their medications or to take them at the appropriate time (Chantra & Moungkan, 2020). Thus, in this study, the elderly indicated their need for this information, and their caregivers also were of the opinion that they needed to know more in order to provide good support to the elderly person in the family. The results of our research also showed that after such educational activities the knowledge scores in this area had increased among the elderly.
There should be a system of management with continuity for the health problems of the elderly, especially for their long-term health care. Investigations into the development of systems for long-term older care services in the community found a lack of policy for long-term health care for the elderly (Loskultong & Sritanyarat, 2012). Thus, in this research, an attempt was made to introduce the working methods, roles and responsibilities of ECMs in the community, and to indicate how their work should be carried out. As Somkamlang & Kitreerawutiwong stated, the main roles and responsibilities of the ECM can be divided into two categories, according to whether they are care providers or care managers. In the system employed in Japan, there is an arrangement for elderly care service in the form of care management, with care managers as the persons who individually organize the format of care for older persons (Trakoolngamden et al., 2018). The voluntary elderly care managers have to be trained and certified by the state (Kelsey & Laditka, 2009). In Thailand, the Ministry of Social Development and Human Security (2014) stated that in order to substantially and systematically help with the daily lives of the elderly, and to understand them, voluntary care managers must be able to analyze the situation, the problems and the feelings of the elderly, and the relevant target groups, as well as conduct home visits, so as to follow up on relevant facts and information, in order to help with the planning of care for the elderly.
In terms of the outcomes of elderly by ECMs, in this present study found that the 2-month community supportive intervention for Thai elderly by ECMs has significantly effect on patients’ knowledge score but there was no significant improvement in elderly’s quality of life by EQ 5D, even an increasing trend of elderly quality of life was found. Whereas a study (Rachasrimuang, 2018) revealed that the 18-week home visit intervention by youth volunteers for the elderly in the Thai rural community showed the significant improvement in EQ 5D (p<0.001). Another study in Australia also found similar result that the discharge program for elderly had positive effect on the six-month quality of life from EQ 5D 0.75±0.16 to 0.84±0.25 within 6 months (Comans et al., 2013). Comparing with two references, the improvement of quality of life needs the suitable duration for implementing the intervention for the elderly.
Problems affecting the health of the elderly in Kruewan1 community are underlying medical conditions, aches and pains, mobility problems, problems with eyesight and visual acuity, problems with oral and dental health, and not being able to be self-dependent. The needs of the elderly in the community are related to other problems which were identified such as the need to have an income-generating occupation, the need for essential commodities, financial support, knowledge about illnesses they suffered and the medications, equipment for mobility and for exercise groups, and to have consultation regarding mental health issues arising from depression due to the loss of loved ones.
From the views which were expressed about ECMs by those involved in healthcare for the elderly in the community, members of the community, public sector personnel, and health professionals, it may be concluded that an ECM needed to be someone from the community who is healthy and responsible, who puts their heart into the work, is service-minded, is willing to take on their responsibilities, fully dedicates their time to their work, is flexible, able to travel in order to coordinate their work, understands the elderly, and can work alone or in a team. While the level of education attained by such individuals is not an issue, this person needs to be literate and have a basic knowledge of health care. They also need to know the situation and the needs of the elderly in the community, and the pertinent channels of coordination or communication with relevant agencies with regard to health care for the elderly. They need to have communication skills, the capability to plan well, and get along easily with those in their areas, or from relevant teams. They are required to use appropriate communication channels in order to coordinate with others both within and outside of the community. Additionally, they need to use the appropriate information technology and computing systems. Their main responsibilities are to coordinate with relevant agencies in order to be able to respond to the basic needs of the elderly in the community.
The information on the health of elderly persons who are on the public sector database is not up to date. Some of the elderly no longer live in the community but their names are still on the database. This caused problems in the collection of complete information in the survey of the elderly persons’ health problems. Additionally, the elderly person’s ability to recall is decreased and their recollection may be significantly limited on such matters as their medication use. Interviews, therefore, had to be conducted in the presence of others as well, such as the caregivers and the families. ECMs coordination with health-related agencies, which can provide contribution or intervention according to health needs of the elderly, provides a connection between the community and health-related agencies, and can be said to be one supporting components in terms of improving the situation of people of the elderly. However, it may not show up in terms of direct effects on such outcomes. There are other significant influencing factors, such as interventions by health-related agencies, the compliance displayed by the elderly themselves to instructions that are prescribed to them and the level of support that they receive from their families, all play a role.
• The connection between health services and the elderly in the community is the crucial elements of the long-term care. Elderly Care Manager (ECM), a voluntary coordinator in the community, is a key person for making the smooth connection.
• The opinions of the relevant persons, health-related officers and lay persons, about the ECMs, as well as the working process to recruit ECMs were created.
• The supportive interventions coordinated by ECMs has significantly affected on elderly’s health needs.
• Elderly participation in their own community to co-create, develop, and implement the health-related project with the local authorities, is significant strategy for enhancing both elderly empowerment and community engagement. It could be generalized in other aging community.
• ECMs, recruited by community will be accepted and allowed to coordinate with elderly for improving their quality of life. They will be able to provide continuous help, manage problems, and respond to the elderly’s health needs.
• Elderly home visit is an encouraging process to learn and understand their health needs. It could be applied for elderly in other area.
Figshare: Managing Health Care Needs of the Elderly through an Elderly Care Manager: Thailand, https://doi.org/10.6084/m9.figshare.19961522.v2 (Ploylearmsang et al., 2022).
Figshare: Data coding, https://doi.org/10.6084/m9.figshare.20010527.v1 (Ploylearmsang, 2022b).
Figshare: Questionnaire and Questions for group discussion, https://doi.org/10.6084/m9.figshare.20010536.v1 (Ploylearmsang, 2022a).
Data are available under the terms of the Creative Commons Attribution 4.0 International license (CC-BY 4.0).
The authors give thanks to all of the older patients, the health volunteers, and the health-related agencies in Kruewan Community1 for the co-operations during the research time. A sincere thank you to Professor Thomas Paraidathathu for proofreading the article.
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Is the work clearly and accurately presented and does it cite the current literature?
Yes
Is the study design appropriate and is the work technically sound?
Yes
Are sufficient details of methods and analysis provided to allow replication by others?
Yes
If applicable, is the statistical analysis and its interpretation appropriate?
I cannot comment. A qualified statistician is required.
Are all the source data underlying the results available to ensure full reproducibility?
Yes
Are the conclusions drawn adequately supported by the results?
Yes
Competing Interests: No competing interests were disclosed.
Reviewer Expertise: Geriatrician
Is the work clearly and accurately presented and does it cite the current literature?
Yes
Is the study design appropriate and is the work technically sound?
Partly
Are sufficient details of methods and analysis provided to allow replication by others?
Partly
If applicable, is the statistical analysis and its interpretation appropriate?
Partly
Are all the source data underlying the results available to ensure full reproducibility?
Partly
Are the conclusions drawn adequately supported by the results?
Partly
Competing Interests: No competing interests were disclosed.
Reviewer Expertise: Geriatric polypharmacy , hospital readmissions
Is the work clearly and accurately presented and does it cite the current literature?
Yes
Is the study design appropriate and is the work technically sound?
Yes
Are sufficient details of methods and analysis provided to allow replication by others?
Yes
If applicable, is the statistical analysis and its interpretation appropriate?
Yes
Are all the source data underlying the results available to ensure full reproducibility?
Yes
Are the conclusions drawn adequately supported by the results?
Partly
Competing Interests: No competing interests were disclosed.
Reviewer Expertise: health services research, pharmacoepidemiology, drug utilization study, instrumental development, longitudinal design, and longitudinal statistical models.
Alongside their report, reviewers assign a status to the article:
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