<p>The power of sharing data: 10 years experience with PatientsLikeMe in ALS</p>

Paul Wicks

doi:10.7490/f1000research.1113508.1

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Wicks P. The power of sharing data: 10 years experience with PatientsLikeMe in ALS [version 1; not peer reviewed]. F1000Research 2016, 5:2831 (slides) (https://doi.org/10.7490/f1000research.1113508.1)

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The power of sharing data: 10 years experience with PatientsLikeMe in ALS

Paul Wicks¹

Published 08 Dec 2016 (https://doi.org/10.7490/f1000research.1113508.1)

Author Affiliations

¹ PatientsLikeMe, UK

Copyright © 2016 Wicks P. This is an open access work distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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CITE

Published 08 Dec 2016

The power of sharing data: 10 years experience with PatientsLikeMe in ALS
[version 1; not peer reviewed]

Paul Wicks¹

Author Affiliations

¹ PatientsLikeMe, UK

Presented at

27th International Symposium on ALS/MND 2016

Abstract

Competing Interests

PW is an employee of PatientsLikeMe and holds stock options in the company.
The PatientsLikeMe Research Team has received research funding (including conference support and consulting fees) from Abbvie, Accorda, Actelion, Alexion, Amgen, AstraZeneca, Avanir, Biogen, Boehringer Ingelheim, Celgene, EMD, Genentech, Genzyme, Janssen, Johnson & Johnson, Merck, Neuraltus, Novartis, Otsuka, Pfizer, Sanofi, Takeda, and UCB. The PatientsLikeMe R&D team has received research grant funding from Kaiser Permanente, the Robert Wood Johnson Foundation, Sage Bionetworks, The AKU Society, and the University of Maryland. PW has received speaker fees from Bayer and honoraria from Roche, ARISLA, IMI, AMIA, PSI, and the BMJ.
PW is an associate editor at the Journal of Medical Internet Research and is on the Editorial Boards of The BMJ and BMC Medicine.

Keywords

ALS, amyotrophic lateral sclerosis, MND, PatientsLikeMe, internet

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