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Study Protocol

Governance of access to basic services for persons with disabilities in Indonesia: a three-city mixed-methods study protocol using the Gender Equality, Disability and Social Inclusion (GEDSI) framework

[version 1; peer review: awaiting peer review]
PUBLISHED 08 Jun 2026
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REVIEWER STATUS AWAITING PEER REVIEW

Abstract

Background

Persons with disabilities face persistent barriers in accessing basic services, including barriers related to governance arrangements, service procedures, coordination mechanisms, provider readiness, and accountability structures. In Indonesia, disability rights and accessibility are recognised in international and national frameworks, but implementation across sectors and localities remains uneven, creating a need for operational indicators and context-specific evidence to inform measurable governance improvements.

Protocol

This study will be conducted in Bogor, Makassar, and Banjarmasin using an integrated mixed-methods design. Quantitative components include a service-provider readiness survey across the education, health, and employment sectors, a self-report survey among persons with disabilities on lived experiences of access, and a structured facility accessibility audit. Qualitative and participatory components include document, policy, and standard operating procedure analysis and multi-stakeholder workshops using the GEDSI Self-Assessment Tool and the Validation, Reflection and Action Planning (VRAP) process. The protocol is designed to generate baseline evidence on readiness, accessibility, lived experience, and governance arrangements; support development and evaluation of sector-specific readiness instruments; and facilitate co-prioritisation of governance improvements and candidate monitoring indicators.

Discussion

By specifying the study design, indicators, instruments, procedures, and analysis plan prior to full implementation, this protocol is intended to strengthen transparency, traceability, and methodological accountability. The study is expected to contribute policy-relevant evidence for disability-inclusive governance of basic services at subnational level in Indonesia.

Registration

The study was prospectively preregistered on the Open Science Framework on 15 January 2026. Ethics: Ethical approval was granted by the Komite Etik Penelitian yang Melibatkan Subjek Manusia, IPB University (No. 2150/IT3.KEPMSM-IPB/SK/2026).

Keywords

Accessibility, Basic services, Disability-inclusive governance, GEDSI, Indonesia, Mixed-methods, Participatory governance, Persons with disabilities

Introduction

Persons with disabilities experience inequities in accessing basic services that are shaped not only by individual circumstances but also by governance-related conditions, including rules and entitlements, service procedures, coordination arrangements, implementer readiness, institutional responsiveness, and accountability structures. Addressing these barriers therefore requires more than service expansion; it also requires governance arrangements that are measurable, monitorable, and responsive to disability-inclusive principles and aligned with wider efforts to build disability-inclusive health systems (World Health Organization, 2022; Australian Government Department of Foreign Affairs and Trade, 2023; Water for Women Fund, 2025; Kuper et al., 2024).

In Indonesia, disability rights are supported by the Convention on the Rights of Persons with Disabilities and by national legal and policy reforms that emphasise accessibility, non-discrimination, participation, and reasonable accommodation. Recent analysis of disability policy reform in Indonesia also suggests that progressive legal development has not always been matched by full implementation in practice (Tsaputra et al., 2024). However, implementation across sectors and localities remains uneven. Legal recognition does not automatically produce accessible procedures, coordinated delivery systems, or accountable local implementation. This creates a need for city-level governance evidence that can translate normative commitments into operational indicators, practical assessment procedures, and feasible improvement plans (United Nations, 2006; Republik Indonesia, 2016; Republik Indonesia, 2020; World Health Organization, 2022; Australian Government Department of Foreign Affairs and Trade, 2023; Badan Pusat Statistik, 2023).

This study applies the Gender Equality, Disability and Social Inclusion (GEDSI) framework as an analytical and operational lens for examining access to basic services among persons with disabilities. GEDSI is used to translate participation, intersectionality, power relations, accessibility, and accountability into assessable constructs, indicators, and procedures. The protocol combines service-provider readiness assessment, lived-experience data, facility accessibility audits, document and policy review, and participatory validation and action planning to generate a practical baseline for subnational governments and stakeholders (Bowen, 2009; Australian Government Department of Foreign Affairs and Trade, 2023; Water for Women Fund, 2025; National Institute for Health and Care Research, 2021; Staniszewska et al., 2017).

Publishing this protocol is intended to enhance transparency and accountability by specifying operational definitions, instruments, study procedures, and the analysis plan prior to full implementation so that protocol deviations can be identified and traced. The protocol also provides a cross-sector, three-city framework for evidence-informed policy learning on disability-inclusive governance of basic services in Indonesia (Water for Women Fund, 2025; Chambers and Tzavella, 2022). This cross-sector framing is also relevant to the employment domain, where labour-market inclusion of persons with disabilities remains an important policy concern (International Labour Organization and Organisation for Economic Co-operation and Development, 2018).

The overall objective of this study is to develop and empirically assess a GEDSI-based governance framework for disability-inclusive access to basic services in Indonesia using a three-city mixed-methods study in Bogor, Makassar, and Banjarmasin, producing an operational package of cross-sector indicators and study instruments that can be used for baseline assessment, monitoring, and evidence-informed improvement planning at subnational level ( Australian Government Department of Foreign Affairs and Trade, 2023; Water for Women Fund, 2025). The specific objectives are to: (1) map governance arrangements and implementation mechanisms through structured document, policy, and standard operating procedure analysis, generating a traceable evidence base of rules, procedures, roles, and accountability structures (Bowen, 2009); (2) develop and finalise a GEDSI-based indicator blueprint and sector-specific readiness instruments with a documented audit trail, including content validation through stakeholder engagement and DPO participation, to strengthen conceptual grounding and contextual appropriateness ( Australian Government Department of Foreign Affairs and Trade, 2023; Boateng et al., 2018; DeVellis and Thorpe, 2022; Worthington and Whittaker, 2006); (3) estimate baseline service-provider readiness for disability-inclusive basic services across the education, health, and employment sectors in each city and assess key measurement properties of the readiness instruments, including internal structure and reliability, where applicable (de Arruda et al., 2024; de Arruda et al., 2025; Mokkink et al., 2020); (4) assess baseline facility accessibility relevant to basic services using a structured audit approach to generate facility-level and city-level accessibility profiles (Groenewegen et al., 2021; Mactaggart et al., 2024); (5) characterise lived experiences of access barriers and priorities among persons with disabilities, including adolescents aged 15–17 years, using accessible self-report measures (World Health Organization, 2022; World Health Organization, 2024); and (6) conduct participatory validation and action planning with stakeholders, including DPOs, using GEDSI SAT and VRAP to triangulate interpretation of baseline findings and co-prioritise governance improvements and monitoring indicators (Water for Women Fund, 2025; National Institute for Health and Care Research, 2021; Staniszewska et al., 2017).

Protocol

Study design

This three-city mixed-methods study uses a participatory governance approach to examine how governance arrangements shape access to basic services for persons with disabilities in Indonesia. The study will generate baseline quantitative profiles of service-provider readiness, lived experience of access, and facility accessibility, while also producing qualitative explanations of governance mechanisms through document and policy analysis and participatory reflection and action planning with key stakeholders, including Disabled People’s Organisations (Bowen, 2009; Creswell and Plano Clark, 2018; Patton, 2015).

The mixed-methods logic combines structured baseline measurement with explanatory qualitative and participatory components. Quantitative streams provide cross-city and cross-sector baseline profiles, while qualitative and participatory streams clarify mechanisms, contextual factors, and implementation processes that may not be fully captured through surveys alone (Creswell and Plano Clark, 2018; Patton, 2015). Integration will be undertaken through triangulation across data sources and through joint displays that synthesise city- and sector-specific findings into coherent meta-inferences to support actionable governance recommendations. An overview of the study design, core components, units of analysis, and expected outputs is provided in Table 1.

Table 1. Overview of the study design and components.

This table summarises the overall architecture of the three-city mixed-methods protocol, including each study component, its purpose, principal data sources, unit of analysis, and expected analytic output.

Study componentPrimary purposePrincipal data source(s)Unit of analysisExpected output
Document, policy, and SOP analysisTo map governance arrangements, implementation mechanisms, coordination pathways, and accountability structures relevant to disability-inclusive access to basic servicesRegulations, decrees, local plans, technical guidelines, standard operating procedures, service forms, public information materials, and related institutional documentsDocument, institution, and governance systemGovernance map, implementation-gap analysis, and structured institutional synthesis
Readiness surveyTo assess disability-inclusive readiness among service providers in the education, health, and employment sectorsStructured questionnaire administered to eligible service providersIndividual service providerSector-specific and city-specific readiness profiles
Self-report surveyTo describe lived experiences of barriers, facilitators, service encounters, and access priorities among persons with disabilitiesStructured self-report questionnaireIndividual respondentBaseline profile of user-reported barriers, facilitators, and priorities
Facility accessibility auditTo assess accessibility conditions across selected service pointsStructured observational checklist and operational scoring rulesFacility or service pointFacility-level and city-level accessibility profiles
GEDSI SAT and VRAP participatory workshopsTo validate findings, interpret root causes, and co-prioritise feasible governance actionsStakeholder workshop records, facilitated discussion outputs, and action-planning templatesStakeholder group and city-level participatory processValidated findings, action priorities, and implementation-oriented recommendations
Mixed-methods integrationTo synthesise evidence across quantitative, qualitative, and participatory componentsOutputs from all study componentsIntegrated evidence setTriangulated interpretation and meta-inferences for governance improvement

Study setting and period

The study will be conducted in three Indonesian cities: Bogor, Makassar, and Banjarmasin. Sites were selected purposively to capture variation in local service and governance contexts while preserving feasibility for cross-city comparison and participatory implementation.

The planned study period runs from December 2025 to September 2026. The planned phases are: preparation and instrument finalisation, including ethics administration (December 2025–January 2026); initial formative focus group discussion in Bogor City (23 February 2026); quantitative data collection and facility accessibility audits across the three cities (March–May 2026); participatory processes and any required qualitative clarification (June–July 2026); mixed-methods analysis and integration (June–July 2026); manuscript drafting (July 2026); and dissemination of stakeholder materials and accessible summaries (August–September 2026). The implementation phases and indicative timeline are summarised in Table 2.

Table 2. Study timeline and implementation phases.

This table presents the planned implementation sequence for the protocol across the study period, from preparation and instrument finalisation to dissemination.

PhaseIndicative periodMain activitiesExpected output
Phase 1. Preparation and protocol finalisationDecember 2025–January 2026Ethics administration, protocol registration, instrument refinement, version control, and preparation of study materialsApproved and registered protocol; finalised draft instruments
Phase 2. Formative engagementFebruary 2026Initial formative focus group discussion in Bogor City and early contextual refinementFormative insights to inform implementation readiness
Phase 3. Main quantitative and audit data collectionMarch–May 2026Readiness survey, self-report survey, and facility accessibility audit across the three citiesBaseline quantitative and facility audit datasets
Phase 4. Participatory validation and action planningJune–July 2026GEDSI SAT and VRAP workshops, stakeholder interpretation, and action-priority identificationParticipatory validation outputs and recommendation pathways
Phase 5. Analysis and integrationJune–July 2026Data cleaning, descriptive and psychometric analysis, qualitative synthesis, and mixed-methods integrationIntegrated analytic findings
Phase 6. Writing and disseminationJuly–September 2026Manuscript drafting, policy-brief preparation, stakeholder feedback, and accessible summariesDraft manuscripts and dissemination outputs

Units of analysis and participant groups

The study includes four primary units of analysis: (1) service providers in the education, health, and employment sectors; (2) persons with disabilities, including adolescents aged 15–17 years; (3) facilities or service points audited for accessibility; and (4) governance actors and stakeholders involved in planning, implementation, oversight, or participatory validation.

Participant groups are therefore organised as follows: service providers for the readiness survey; persons with disabilities for the self-report survey; facilities for the accessibility audit; and local government, sectoral, and DPO stakeholders for document review input, validation, and participatory action planning.

Recruitment and eligibility

Recruitment will use three complementary channels: coordination with relevant government agencies and regional offices; recruitment through facility and service networks in the education, health, and employment sectors; and collaboration with local DPO partners for community outreach and accessible recruitment of persons with disabilities (National Institute for Health and Care Research, 2021; Staniszewska et al., 2017).

For the readiness survey, eligible participants are individuals working in the relevant sector and study site, including teachers, health workers, and workplace staff or human resource personnel, who are willing and able to provide written informed consent. For the self-report survey, eligible participants are persons with disabilities who reside in or access services in the study sites and are able to participate with reasonable accommodations where needed. Adolescents aged 15–17 years will be included using written parental or guardian consent together with written adolescent assent. For participatory and institutional components, eligible participants are local officials or key actors with roles in planning, implementation, or oversight of relevant services.

To support inclusive participation, the study will provide reasonable accommodations and supported decision-making where needed and feasible, including plain-language or easy-read information materials, communication support, additional time, assistance from trusted supporters where appropriate, and accessible procedures during recruitment, consent or assent, and data collection (Republik Indonesia, 2020; Council for International Organizations of Medical Sciences, 2016).

Sampling and sample size rationale

Sample sizes were defined a priori to support baseline description across three cities and three sectors and to enable the planned measurement-property work for the readiness instruments, drawing on general sample-size guidance for health studies and on recommendations relevant to survey and psychometric analysis (Lwanga and Lemeshow, 1991; Bartlett et al., 2001; Wolf et al., 2013).

For the service-provider readiness survey, the study will recruit 240 respondents per sector per city across education, health, and employment. This yields 720 respondents per city and 2160 respondents overall. This sample will support sector-specific descriptive analyses and the planned evaluation of internal structure, internal consistency, and related measurement properties of the readiness instruments, while any cross-city comparability analyses will be treated as exploratory and feasibility-oriented.

For the self-report survey among persons with disabilities, the target is 20 adults and 10 adolescents aged 15–17 years per city, yielding a total of 90 respondents across the three cities. This component is designed to provide structured baseline descriptions of lived experiences, barriers, and priorities rather than population-representative prevalence estimates.

For the facility accessibility audit, facilities will be selected purposively to reflect cross-sector service pathways and feasibility within each city. Per city, the audit will cover eight facilities: two inclusive junior high schools, two inclusive senior high schools or vocational schools, two primary healthcare centres, and two workplaces or employers. The purpose of this component is to produce structured facility-level and city-level accessibility profiles rather than probabilistic estimates.

Where qualitative interviews or focus group discussions are conducted beyond the planned participatory workshops, these will be limited to DPO representatives and governance stakeholders rather than service users with disabilities, and will use purposeful sampling to maximise informational relevance across roles, sectors, and cities. The participant groups, observational units, and planned sampling targets across study components are summarised in Table 3.

Table 3. Participant groups, units of analysis, and sampling targets.

This table presents the principal participant groups and observational units included in the protocol, together with planned city-level targets, overall targets across the three study sites, and the intended sampling approach.

Study componentParticipant group or observational unitPlanned target per cityPlanned total across 3 citiesSampling approach
Readiness surveyService providers in the education sector240720Sector-based recruitment
Readiness surveyService providers in the health sector240720Sector-based recruitment
Readiness surveyService providers in the employment sector240720Sector-based recruitment
Self-report surveyAdults with disabilities2060Purposive, community-based recruitment
Self-report surveyAdolescents with disabilities aged 15–17 years1030Purposive, community-based recruitment with parental/guardian consent and adolescent assent
Facility accessibility auditInclusive junior high schools26Purposive facility selection
Facility accessibility auditInclusive senior high schools or vocational schools26Purposive facility selection
Facility accessibility auditPrimary healthcare centres26Purposive facility selection
Facility accessibility auditWorkplaces or employers26Purposive facility selection
Participatory validation and action planningDPO representatives and governance stakeholdersContext-dependent Context-dependent Purposive stakeholder selection

Study components and measures

The study comprises five main components.

  • 1. Document, policy, and SOP analysis. Relevant regulations, decrees, plans, technical guidelines, standard operating procedures, service forms, public information materials, and other governance documents will be systematically identified, screened, and analysed. The aim is to map mandates, procedures, implementation rules, coordination mechanisms, and accountability arrangements relevant to disability-inclusive access across sectors and cities. Extraction will use a structured matrix, and coding decisions will be documented to maintain traceability.

  • 2. Readiness survey among service providers. A structured readiness survey will be administered to service providers in the education, health, and employment sectors. The instrument is intended to assess disability-inclusive readiness in relation to governance, accessibility, responsiveness, coordination, and support for reasonable accommodation. Instrument development follows an explicit pathway that includes construct specification, indicator blueprinting, item generation, stakeholder-informed content refinement, limited piloting where needed, and version freezing prior to main data collection.

  • 3. Self-report survey among persons with disabilities. A structured self-report instrument will be used to capture lived experiences of access barriers, facilitators, priorities, and service encounters. This component grounds the governance assessment in the perspectives of service users and helps identify areas where institutional and facility-level findings align with or diverge from lived experience.

  • 4. Facility accessibility audit. A structured audit will be conducted using observation checklists, operational definitions, and scoring rules to assess architectural, informational, communication, and procedural accessibility. Audits are intended to generate facility-level baseline profiles and to complement survey and document findings.

  • 5. Participatory reflection and action planning. Multi-stakeholder participatory workshops will be convened in each city using the GEDSI Self-Assessment Tool (GEDSI SAT) and Validation, Reflection and Action Planning (VRAP). These processes will be used to triangulate and refine interpretation of baseline findings, identify root causes and leverage points, and co-prioritise feasible governance actions. The main instruments, structured tools, and data sources used across study components are summarised in Table 4.

Table 4. Summary of study instruments, tools, and data sources.

This table summarises the principal instruments and structured tools used across the protocol, including their respondent or source, substantive focus, format, and planned analytic use.

Instrument or toolRespondent or sourceSubstantive domain(s)FormatPlanned analytic use
Governance document extraction matrixPolicies, plans, SOPs, forms, and related governance documentsMandates, implementation rules, coordination mechanisms, accountability, inclusion provisions, and procedural requirementsStructured extraction matrixGovernance mapping and document-based synthesis
Readiness questionnaireService providers in education, health, and employmentDisability-inclusive readiness, accessibility support, responsiveness, coordination, and reasonable accommodationStructured questionnaireBaseline readiness assessment and measurement-property analysis
Self-report questionnairePersons with disabilitiesAccess barriers, facilitators, service experiences, and access prioritiesStructured questionnaireBaseline profiling of lived experience
Accessibility audit checklistSelected facilities and service pointsArchitectural, informational, communication, and procedural accessibilityStructured observational checklistFacility-level accessibility assessment
GEDSI SATMulti-stakeholder participantsStructured self-assessment of disability-inclusive governance conditionsParticipatory workshop toolValidation and interpretive refinement of baseline findings
VRAPMulti-stakeholder participantsPriority actions, responsible actors, implementation steps, and recommendation pathwaysParticipatory action-planning toolAction prioritisation and governance recommendation development

Instrument development, validation, and freezing

The study uses a structured and documented development pathway for the readiness instruments and other measurement tools. Constructs and domains are derived from the GEDSI framework and accessibility domains, then translated into measurable indicators. Draft instruments will undergo expert-informed refinement, DPO-informed review for accessibility and relevance, and limited piloting where needed. Prior to main data collection, the final instrument versions will be frozen and archived, and any post-freeze changes will be documented in change logs and deviation records.

For the readiness instruments, measurement-property work is planned on internal structure and internal consistency, with exploratory assessment of cross-city comparability where feasible. Reporting of the measurement-property component in future outputs will draw on relevant COSMIN guidance (de Arruda et al., 2024; de Arruda et al., 2025; Mokkink et al., 2020).

Data collection procedures

Data collection will follow standard operating procedures and component-specific quality controls. For document review, metadata, eligibility decisions, and extracted content will be recorded in a structured extraction matrix. For the readiness survey, field teams will use standard administration procedures, scripted explanations, completeness checks, and coded scoring rules. For the self-report survey, data collection procedures will be adapted to participant needs through accessible formats and reasonable accommodations, with the aim of supporting both inclusion and data quality. For the facility accessibility audit, auditors will use a shared operational guide and pre-specified scoring rules, with ambiguous observations resolved through documented decision rules. For participatory workshops, facilitators will use standard templates for documentation while minimising unnecessary identifiers.

Outcomes

The study is designed to generate baseline evidence rather than evaluate a discrete intervention. The primary outcomes are therefore baseline governance-related outputs and profiles.

Primary outcomes

  • 1. Sector-specific service-provider readiness profiles for disability-inclusive basic services across education, health, and employment in Bogor, Makassar, and Banjarmasin.

  • 2. Facility-level and city-level accessibility profiles derived from the structured facility accessibility audit.

  • 3. Structured descriptions of lived experiences of access barriers and priorities among persons with disabilities.

  • 4. Governance maps and action priorities generated through document analysis and participatory validation processes.

Secondary outcomes

  • 1. Evidence on the internal structure and internal consistency of the readiness instruments.

  • 2. Exploratory evidence regarding the feasibility of cross-city comparability for the readiness measures.

  • 3. Structured identification of implementation bottlenecks, coordination issues, and priority actions emerging from GEDSI SAT and VRAP processes. The primary and secondary protocol outputs are summarised in Table 5.

Table 5. Overview of primary and secondary outputs.

This table distinguishes the principal outputs generated by the protocol and clarifies their status as primary or secondary protocol outputs.

Output categoryOutputLevelRole in the protocol
Primary outputService-provider readiness profiles across education, health, and employmentSector and cityBaseline assessment of disability-inclusive readiness
Primary outputFacility accessibility profilesFacility and cityBaseline assessment of accessibility conditions
Primary outputStructured descriptions of lived experiences of access barriers and prioritiesIndividual and cityUser-centred baseline evidence
Primary outputGovernance maps and action prioritiesSystem and cityGovernance-oriented interpretation and planning support
Secondary outputEvidence on internal structure of readiness instrumentsInstrument levelMeasurement-property assessment
Secondary outputEvidence on internal consistency of readiness instrumentsInstrument levelMeasurement-property assessment
Secondary outputExploratory evidence on cross-city comparabilityCross-city Feasibility-oriented comparability assessment
Secondary outputStructured identification of implementation bottlenecks and priority actionsSystem and stakeholder levelAction-oriented interpretation from participatory processes

Data analysis plan

Quantitative analysis will begin with data preparation and quality checks, including completeness review, range validation, internal consistency checks, and documented cleaning decisions. Descriptive statistics will summarise readiness scores, self-reported access experiences, and facility accessibility scores by city and sector.

For the readiness survey, measurement-property analysis will include exploratory and/or confirmatory factor-analytic procedures where justified, model-fit evaluation, internal consistency estimation, and item-performance diagnostics. Any cross-city comparability analyses, including measurement invariance where feasible, will be conducted as exploratory and feasibility-oriented analyses rather than as confirmatory tests.

Qualitative analysis will include structured document analysis and thematic interpretation of governance arrangements, procedures, coordination mechanisms, and accountability structures. Where thematic coding is applied to workshop or interview material, the analysis will draw on established thematic analysis procedures (Braun and Clarke, 2006). Outputs from GEDSI SAT and VRAP workshops will be analysed thematically to identify prioritised issues, hypothesised root causes, responsible actors, agreed actions, and enabling or constraining conditions. The interpretation of themes will be conducted reflexively and iteratively during analysis (Braun and Clarke, 2019). If any additional interviews or focus groups are conducted, they will be limited to DPO representatives and governance stakeholders and analysed thematically using explicit analytic steps.

Mixed-methods integration will be carried out through triangulation, joint displays, and meta-inferences. Findings across surveys, audits, document analysis, and participatory outputs will be compared to identify convergence, complementarity, and divergence, with integration decisions documented in an audit trail. A summary of the analyses and intended outputs for each study component is presented in Table 6.

Table 6. Planned analysis by study component.

This table outlines the planned analytic approach for each study component, including the primary type of analysis, key analytic focus, and intended output.

Study componentType of analysisKey analytic focusPlanned output
Document, policy, and SOP analysisStructured qualitative and matrix-based analysisGovernance arrangements, implementation pathways, institutional rules, coordination mechanisms, and accountability structuresGovernance narrative and extraction-based synthesis
Readiness surveyDescriptive and psychometric analysisSector-specific and city-specific readiness profiles, internal structure, internal consistency, and exploratory comparabilityReadiness scores, descriptive summaries, and measurement-property findings
Self-report surveyDescriptive analysisUser-reported barriers, facilitators, service encounters, and access prioritiesBaseline user-perspective profile
Facility accessibility auditDescriptive scoring and profile analysisAccessibility conditions and domain-specific gaps by facility and cityFacility-level and city-level accessibility profiles
GEDSI SAT and VRAP outputsThematic and action-oriented analysisValidation of baseline findings, root causes, leverage points, responsible actors, and priority actionsParticipatory validation summary and action recommendations
Mixed-methods integrationTriangulation, joint-display development, and meta-inference Convergence, complementarity, divergence, and integrated interpretation across componentsIntegrated governance-oriented interpretation

Data management and quality assurance

All study data will be managed under the approved ethics protocol with safeguards to protect confidentiality and reduce re-identification risk, particularly for qualitative and small-subgroup data. Identifiers will be separated from analytic datasets and stored in restricted-access linkage files. Quantitative datasets will be supported by codebooks documenting variable names, labels, response options, derived variables, and scoring rules.

Quality assurance will include training and supervision of field teams, completeness and consistency checks, scripted administration, standard scoring rules, inter-rater guidance for audits, traceable coding procedures for document analysis, and standard templates for participatory outputs (Bowen, 2009; Boateng et al., 2018; Chambers and Tzavella, 2022).

Patient and public involvement

Persons with disabilities and DPOs are involved in the planning of this study and will continue to be involved in implementation, interpretation, and dissemination (National Institute for Health and Care Research, 2021; Staniszewska et al., 2017). DPO partners support recruitment and outreach, advise on accessible formats and reasonable accommodations, and contribute to the contextualisation and validation of findings through participatory governance processes.

Public involvement is planned across multiple stages. Before main data collection, DPO input is used to improve accessibility and acceptability of consent materials and questionnaires. During data collection, DPO partners may assist outreach and advise on accommodation needs. During analysis and integration, participatory workshops using GEDSI SAT and VRAP will include DPOs and other stakeholders to refine interpretation and co-prioritise actions. During dissemination, DPO partners will advise on the format and accessibility of outputs such as policy briefs, feedback materials, and plain-language summaries. All such processes will be documented so that later outputs can report public involvement transparently.

Dissemination

Findings will be disseminated through peer-reviewed publications, city-level policy briefs, stakeholder feedback sessions, and accessible outputs such as plain-language summaries developed with DPO input (National Institute for Health and Care Research, 2021; Council for International Organizations of Medical Sciences, 2016). The dissemination strategy is designed for both academic audiences and applied governance stakeholders. Policy-oriented outputs will emphasise actionable recommendations for local government, service providers, and partner institutions. Community-oriented outputs will prioritise accessibility, readability, and practical usefulness.

Subject to ethical approval and confidentiality safeguards, quantitative datasets, codebooks, and analysis scripts are planned for future archiving in the study repository. Qualitative raw data will not be fully shared because of the risk of participant re-identification, particularly in context-specific and small-group participatory settings. Any shared materials will therefore be governed by confidentiality protections, access conditions, and data-minimisation principles.

Study status

At the time of protocol submission, the full three-city main data collection had not yet commenced. The protocol was prospectively preregistered to strengthen transparency regarding planned objectives, design, instruments, and analysis before the availability of primary results (Chambers and Tzavella, 2022). Preparation of instruments, ethics administration, and protocol registration had been completed. Ethical approval was obtained from the Komite Etik Penelitian yang Melibatkan Subjek Manusia, IPB University, and the protocol was prospectively preregistered on the Open Science Framework on 15 January 2026.

An initial formative focus group discussion was conducted in Bogor City on 23 February 2026 to inform early understanding of barriers, solutions, and stakeholder expectations. Main quantitative data collection and facility accessibility audits across Bogor, Makassar, and Banjarmasin are scheduled for March–May 2026, followed by participatory validation and action-planning processes and mixed-methods integration.

Discussion

This protocol describes a three-city mixed-methods study designed to generate auditable baseline evidence on disability-inclusive governance of access to basic services in Indonesia. By integrating service-provider readiness assessment, lived-experience self-report, facility accessibility audits, document and policy analysis, and participatory reflection and action planning, the study is intended to produce policy-relevant evidence on governance arrangements, implementation gaps, and feasible pathways for improvement (World Health Organization, 2022; Water for Women Fund, 2025). A key contribution of the protocol is the integration of cross-sector readiness assessment, lived-experience data, facility accessibility audits, governance-document analysis, and participatory reflection within a single GEDSI-based framework.

A major strength of the protocol is its combination of cross-sector, multi-city, and mixed-methods components in a single governance-oriented framework. The study is designed not only to describe baseline conditions, but also to connect observed patterns in readiness, accessibility, and lived experience with the rules, procedures, coordination mechanisms, and accountability arrangements that may help explain them (Bowen, 2009; Creswell and Plano Clark, 2018; Patton, 2015). The protocol also incorporates structured instrument development, measurement-property assessment for the readiness component, version control, and an explicit audit trail, thereby strengthening transparency and methodological traceability (Boateng et al., 2018; DeVellis and Thorpe, 2022; de Arruda et al., 2024; Mokkink et al., 2020; Wolf et al., 2013; Chambers and Tzavella, 2022). In addition, the planned involvement of persons with disabilities and Disabled People’s Organisations is intended to improve accessibility, contextual relevance, and the practical usefulness of study outputs (National Institute for Health and Care Research, 2021; Staniszewska et al., 2017).

Several limitations should be acknowledged at protocol stage. First, the study is observational and context-specific; findings should therefore be interpreted primarily as evidence for governance learning and local improvement rather than as nationally representative estimates. Second, several components, including self-report, participatory processes, and facility selection, are purposive and feasibility-oriented. Third, cross-city comparability of the readiness instruments will be explored, but cannot be assumed a priori because comparability depends on instrument performance and contextual variation (de Arruda et al., 2024; de Arruda et al., 2025; Mokkink et al., 2020; Wolf et al., 2013). Finally, although the protocol is designed to support actionable governance recommendations, it does not test causal effects of a discrete intervention and should not be interpreted as an intervention trial.

Overall, this protocol is intended to support more transparent, evidence-informed, and disability-inclusive governance planning at subnational level in Indonesia. By providing a structured baseline and a participatory process for validation and priority setting, it aims to establish a practical foundation for future monitoring, local action, and subsequent research on improving governance of access to basic services for persons with disabilities (World Health Organization, 2024; Water for Women Fund, 2025).

Ethical considerations

This study received ethical approval from the Komite Etik Penelitian yang Melibatkan Subjek Manusia, IPB University (Approval No. 2150/IT3.KEPMSM-IPB/SK/2026). Ethical conduct will follow recognised principles for research involving human participants, including voluntary participation, accessible consent, minimisation of risk, and confidentiality protections (Council for International Organizations of Medical Sciences, 2016; World Medical Association, 2013). All participants will receive clear and accessible information about the study before enrolment. Adult participants will provide written informed consent before participation. No verbal consent procedures are planned. For adolescents aged 15–17 years, participation requires written parental or guardian consent together with written adolescent assent. Where a participant is unable to provide a handwritten signature, consent or assent may be documented using a thumbprint in accordance with the approved ethics materials and accessible study procedures.

Accessible written consent and assent procedures will be implemented using appropriate communication supports and reasonable accommodations tailored to participant needs (Republik Indonesia, 2020; Council for International Organizations of Medical Sciences, 2016). These may include plain-language or easy-read information sheets, additional time, communication assistance, and supported decision-making where needed and feasible.

The study is designed as minimal risk. Anticipated risks relate mainly to psychological discomfort when discussing exclusion or barriers and to privacy risks in small-group participatory settings. Risk mitigation measures include trained field teams, careful facilitation, minimisation of unnecessary identifiers, separation of identifying information from analytic datasets, restricted-access data storage, and clear confidentiality boundaries during workshops and qualitative activities. No undue inducement will be provided; however, transport reimbursement may be offered where appropriate to reduce participation barriers and support equitable involvement.

No figures are included in this protocol version. Any figures submitted later will be uploaded separately and accompanied by full legends.

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Fatchiya A, Andriani I, Alif M et al. Governance of access to basic services for persons with disabilities in Indonesia: a three-city mixed-methods study protocol using the Gender Equality, Disability and Social Inclusion (GEDSI) framework [version 1; peer review: awaiting peer review]. F1000Research 2026, 15:886 (https://doi.org/10.12688/f1000research.179421.1)
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Open Peer Review

Current Reviewer Status:
AWAITING PEER REVIEW
AWAITING PEER REVIEW
?
Key to Reviewer Statuses VIEW
ApprovedThe paper is scientifically sound in its current form and only minor, if any, improvements are suggested
Approved with reservations A number of small changes, sometimes more significant revisions are required to address specific details and improve the papers academic merit.
Not approvedFundamental flaws in the paper seriously undermine the findings and conclusions

Comments on this article Comments (0)

Version 1
VERSION 1 PUBLISHED 08 Jun 2026
Comment
Alongside their report, reviewers assign a status to the article:
Approved - the paper is scientifically sound in its current form and only minor, if any, improvements are suggested
Approved with reservations - A number of small changes, sometimes more significant revisions are required to address specific details and improve the papers academic merit.
Not approved - fundamental flaws in the paper seriously undermine the findings and conclusions
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