Keywords
Person-centred approach, health professional education, counselling, facilitation, qualitative research, empowerment education, diabetes
This article is included in the Health Services gateway.
Person-centred approach, health professional education, counselling, facilitation, qualitative research, empowerment education, diabetes
Diabetes care focuses on blood glucose management to prevent micro and macro vascular complications. Success depends mainly on individual self-management, including dietary behaviours, medication/insulin management, and monitoring. The ability to self-manage is influenced by psychosocial aspects, which present wide-ranging and individual barriers. Living with diabetes can impose a psychological burden, including a higher prevalence of distress and depression, which predict poor physical outcomes.1,2 People with diabetes have asked professionals to pay attention to their psychological health.3,4 This requires professionals, many of whom were trained in the traditional medical paradigm, to provide care that supports self-management.5 The remit of the professional is to support behaviour change, but this can only be effective when framed in the context of the person’s life.6
Many educators have developed courses to teach psychosocial care, but evidence of effectiveness is limited. Courses most often concentrate on communication skills, for which there is some evidence of effectiveness, mainly in cancer care and primary care. ‘High-intensity’ courses (lasting days rather than hours) delivered by clinicians or researchers with curricula that include cognitive, behavioural, and affective skills development, filmed role play, and individualised feedback have helped clinicians elicit people’s’ concerns.7 These have also helped clinicians exhibit a person-centred consultation style including expressing empathy.8,9 Transfer of these skills into everyday practice cannot be assumed.10,11 There is a dearth of well-evaluated interventions that more directly target behaviour change, extend beyond communication skills, and examine longer-term impact.
The diabetes five-step empowerment model was first introduced in 1991.12 Patients identify their issues/problems, explore their thoughts and feelings in relation to these, consider options, make a plan for change and finally how to evaluate the plan.
Successful empowerment education requires a person-centred collaborative relationship between clinician and the person with diabetes. This can be achieved when the clinician is able to let go of the traditional medical model of socialisation towards themself as expert and the person with diabetes as passive, which is also reinforced by workplace hierarchies.13 This paradigm shift14 requires skills and a consultation structure (the empowerment model) that enables the clinician to help people to reflect on their lives with diabetes and decide what is important to them and what they wish to change.
The empowerment approach focuses on the experience of life with diabetes including eliciting barriers to diabetes self-management, exploring the burden of living with diabetes, and facilitating patient identified goals and planning for change.12
One way the empowerment approach has been put into practice in the UK is through a three-day course in which participants develop a philosophy based on the Person-Centred Approach to counselling created by Carl Rogers.15 In 2008, Professor Bob Anderson from the University of Michigan met with the faculty of an existing UK counselling course to help redesign it to include the empowerment model of education. This has enabled participants to combine the person-centred approach with the five-step empowerment model within a consultation structure.16
The present research results from over a decade’s experience of using this approach to train healthcare professionals to help people with diabetes optimise their diabetes self-management.
Course participants said that attending the course not only enhanced their care for people with diabetes but had a ‘transformative’ effect on their clinical practice and their personal lives. This study focuses on the experience of the participants during and following training in person-centred empowerment education. Reasoning that a clearer understanding of participants’ experiences might provide much-needed insight into the education of healthcare professionals for psychosocial care, the authors set out to explore the phenomenon.
Ethical approval was obtained from the School of Medicine, Dentistry and Biomedical Sciences Research Ethics Committee, Queen’s University, Belfast.
This was an in-depth, exploratory qualitative analysis of the experiences of an opportunity sample of health professionals. It was designed to clarify professionals’ lived experiences of participating in an educational intervention grounded in person-centred philosophy and the diabetes empowerment approach.
Qualitative research is constructivist in the sense that researchers engage subjectively with what participants say, and ‘construct’ interpretation. Whilst this does not ‘prove’ that relationships exist, it does provide rich descriptions of social phenomena, which can be transferred to other people in other places. Rigour is enhanced by giving qualitative research projects an explicit theoretical orientation, linking the findings to a wider body of knowledge, rather than researchers’ whim. The methodology of this project was interpretative phenomenology, which interprets people’s accounts of their life experiences. The researcher makes sense of, or interprets, participants’ experiences within the context of the study.17,18
This research treats the empowerment course as a ‘complex intervention’, whose impact can be explored by examining participants’ subjective experiences. The curriculum is designed to enable delegates to reflect on what person-centred care means to them. The course is held over three days, twice a year, in England and Ireland. The venues are residential and relatively remote, which helps participants reflect without outside distractions. Each course is made up of 18 participants and six trained multidisciplinary healthcare facilitators. These include psychologists, a humanistic person-centred therapist, diabetes specialist dietitian and nurses, and consultant diabetologists.
Participants are introduced to person-centred theory including understanding the core conditions of person-centred practice.19 They practise a range of skills that communicate person-centred care using video real play in small groups made up of three participants and one facilitator. Within the groups, each participant takes their turn to experience the roles of counsellor, client, and observer. When taking the client role, participants are asked to bring an issue that is real to them (rather than roleplay) as this enhances learning through self-awareness and reflection. Feedback sessions within the small groups are led by the counsellor, using interpersonal process recall.20 This allows learning through reflection in a confidential, unthreatening environment. At the end of the course, trained actors role-play people with diabetes enabling delegates to practice what they have learned in a work-related context. Table 1 shows a course programme outlining the components and structure of the course.
Five of the authors who are also course facilitators (FF-W, AK, AA, CF and MD) wrote autoethnographies of 200-400 words reflecting on their own experiences of the course, and their views on the topics of empowerment and diabetes counselling. This step helped them be reflexive; in other words, participate in the research, whilst remaining conscious of their own subjective positions.21 FFW, a female researcher and diabetes specialist nurse who has an MPhil in phenomenological research led the study and interviewed participants. She was well known to participants as a course facilitator and, more widely, a national leader in person-centred diabetes care. The other four authors supported her role in the research by helping her be aware of her presuppositions about the topic, conduct interviews impartially, and interpret participants’ responses with very well-informed and yet detached curiosity about what they said. Technically, this is known as adopting ‘the phenomenological attitude’.
125 multidisciplinary healthcare professional who attended courses between 2008-2016 and whose email addresses were available were informed about the project and invited to complete an online survey (Letter to Participants in Extended data).
The online survey comprised four demographic questions and four open-ended questions about their experiences during and after the course (Online Survey Questions in Extended data). Some contact details held for participants who had attended the course in earlier years were likely to be no longer in use, so our sampling strategy was opportunistic which is in keeping with the relativist (all views are equally valid) framework of the research.
Response to the questionnaire was taken as informed consent to take part in the study. Attendance at the course was the only inclusion criterion. Unwillingness to participate was the only exclusion.
Participants willing to take part in telephone interviews gave contact details at the end of the questionnaire. They were sent a separate invitational email for a telephone interview and informed consent was agreed by response to email.
Telephone interviews focused on participants’ personal experiences during and after completing the course. In accordance with phenomenological methodology, questions were open-ended and minimally structured to elicit the unique experiences of each participant (Interview Guide in Extended data). Interviews were carried out during 2017. Length of interview was determined by the depth in which a participant was willing or able to discuss the topic. Each interview was recorded and transcribed verbatim.
The dataset comprised written responses to the online survey and telephone interviews. To preserve confidentiality and avoid bias, the lead researcher (FFW) withheld the names of interviewees and pseudonymized the transcripts. All researchers listened to the audio-recordings as well as reading the transcripts. FFW used the Template Analysis method developed specifically to manage phenomenological research data. She started by systematically populating the Template with a priori themes drawn from researchers’ autoethnographies.22 She then used participants’ responses to the open-ended questions in the online survey to expand those themes. Next, she read individual telephone interviews closely, creating a progressively more sophisticated set of codes and organising these into higher-level interpretative themes, which informed the final written report of findings. Throughout this, she explored how participants experienced person-centred empowerment education, consciously doing so from a phenomenological stance. Co-researchers helped her do this by discussing her interpretation and how preconceptions and biases might have influenced this. We draw heavily on the participants’ own words to report the findings using pseudonyms to disguise the identities of participants.
37 participants (27%) responded to the online survey of which 22 were fully completed (Table 2).
16 (73%) of the 22 responders to the online survey were women, reflecting the gender ratio of the course participants. Most were nurses or doctors with at least 11 years of professional experience. 15 (68%) participated in the 2015 and 2016 courses. 10 responders (5 nurses, 3 doctors, 1 dietitian and 1 psychologist) took part in telephone interviews. Interviews lasted between 20 and 55 minutes.
The final Template (Table 3) has four high-level themes. These and their sub-themes illustrated with quotes from the online survey and the interviews are described below.
Theme 1 From fixer to facilitator
Participants described a journey of change from a ‘fixing’ style of consultation, where they used their expertise to dictate solutions to people with diabetes, to a more facilitative style of consultation, where they engaged with the person with diabetes and focused on what was important for them.
James reflects on his experience of the pressures to be a fixer and then the change in his consultations since becoming more facilitative:
I do think GPs often feel under pressure to come up with answers … Because we can refer as well, we’ve got the whole range of opportunities potentially, to fix things. But, in every sense, I think things (consultations) have improved overall. People have got a lot of things off their chest which were not on the initial agenda in the consultation. I think people are setting the agenda a lot more. We end up talking a lot more about their chosen subjects, rather than mine and they’re happy with that. James, general practitioner
Pauline describes her experience of managing a consultation and feeling an urge to fix but then realising the effectiveness of taking a step back and facilitating:
I think the one thing that I learnt more than anything was to accept that I cannot always "fix things" and that I should stop trying. It is easy to give someone the answer. It is however much better to help them come up with the answer themselves. Pauline, diabetes specialist nurse
Overcoming a fear of silence
A feature of ‘fixing’ was a fear of silence and the strong desire to fill that space within a consultation. Several participants talked of coming to understand that silences gave a person with diabetes time to process and reflect.
What did I take away? I think it was … not having to fear the silence quite so much, I talk a lot, I just do, I talk a lot and sometimes it is, I just cackle along, to fill the gaps, I think it’s a fairly common trait but I do think within a consultation process what I’ve taken away is not being afraid to sit and listen, to paraphrase what they’re saying so that we both understand and not being afraid to let them provide their own answers. Jenny, paediatric diabetes specialist nurse
Becoming unburdened
Providing solutions for people with diabetes and finding that they returned with the issues unresolved had been stressful for ‘fixers’. Participants described how they had experienced a weight of responsibility for glycaemic control and diabetes outcomes in individuals with diabetes. ‘Fixers’ tended to blame themselves using words including ‘ineffective’, ‘hopeless’, ‘a failure’ when people under their care did not do well.
I have often felt that what I was offering as a professional was not eliciting the desired effect. Merely giving information on management and pointing out the obvious like ‘you need to take care of your diabetes’ or ‘take insulin regularly’ was utterly ineffective. Did this mean I was a poor physician? I have always aspired and endeavoured to be a good doctor. A personal sense of failure was prominent. Nadia, consultant physician
Becky describes this solution-focussed way of working as a ‘burden’ and that working in a person-centred way felt ‘like a weight lifted off my shoulders’:
The burden was kind of like that need to solve, obviously in a caring profession, that kind of need to find the answer and solve it for someone … it just felt really freeing, like literally being able to facilitate rather than to actually teach or educate, just kind of letting someone see and explore things which they clearly hadn’t explored. Becky, diabetes specialist nurse
The experience of changing from fixer to facilitator deepened most participants’ understandings of person-centred philosophy. Participants reflected on how this philosophy fitted with their beliefs about practice not only in terms of communication but within the environments and systems of care participants work in.
Theme 2 Being how I want to be
Participants found that working with a person-centred approach allowed them to feel true to themselves and their personal values.
I’ve given myself permission to step out and not be the consultant that everybody expects me to be but be the physician that my patients need me to be … as stupid as it sounds, it actually has allowed me to be happier with who I am now. Nadia, consultant physician
Becky describes a sense of relief at how finding the tools helped her to become person-centred. To be able to function as a congruent clinician had a profoundly positive effect on her:
It’s probably the approach I’ve always wanted to take but this gave me structure … it sort of felt life changing for me. I think I’m more confident because I feel I can genuinely be myself and it feels authentic for me. Becky, diabetes specialist nurse
Theme 3 Reflecting on self
Applying person-centred values to people with diabetes also led participants to apply those values to themselves:
I think the course helps you reflect on yourself and your behaviour … by the fact that you accept the patient as they are, you try to accept yourself as you are. You have more acceptance of who you are and what you do. I think it has made me more content with myself. Naveed, middle grade doctor
Nadia realised she was applying her own values to people with diabetes. As she was able to let go of her own drive to be perfect, she was able to let go of expecting perfection in people with diabetes.
I sort of realised as … as human beings, as people, it’s okay for us not to be at our absolute best all the time. I gave myself permission to be okay at most things and I did not need to be perfect … that’s been huge … but then the penny dropped … that’s exactly what I’m expecting patients to do every time they walk in, expecting them to be perfect, so unconsciously I’m expecting them to do everything right Nadia, consultant physician
Both Nadia and Naveed described letting go of judgemental attitudes towards people with diabetes and towards themselves.
Theme 4 Changing personally and professionally
Naveed described change in the way he would respectfully listen, not only to people with diabetes and work colleagues, but to his family:
I think the course was more than just something to do in the clinic … . it’s about personal behaviours, about you as a person. I think it starts with you, and when it starts with you as a person you start questioning what you do. Then when you change what you’re doing, you find that it doesn’t only apply to clinical, it applies to your day-to-day life. So if someone is talking to me and I’m doing something else, I stop. Either I ask them to come back later when I have done what I’m doing, or I give them my full attention. That’s from my wife to my colleagues at work. I think that’s just a simple example of giving attention to the other person and respecting them and expecting the same. Now if I speak to someone and they’re not respecting me, I just stop talking until they listen, or I walk away, sometimes. Naveed, middle grade doctor
Nadia reflected how the change in her had affected others:
The only person that changed in that one year is me, none of my patients have changed, they haven’t been on any courses, but I am seeing such differences in the clinic. The clinic feels good. Nadia, consultant physician
Jenny described a change that spoke of increased confidence, role satisfaction and self-esteem:
I came away with a greater sense of value for the work that I do … I came away feeling more effective. Jenny, paediatric diabetes specialist nurse
James spoke of long-term professional change because of the personal reward he experiences from seeing the improved responsiveness in his patients as a result of working in this way:
The extent to which I have adopted the learning I think has actually lasted, because I found it very satisfying. It works for me, it’s as good as having a really good new drug. The satisfaction I get from seeing people feeling a little bit better is continuing the motivation for me. It’s not costing me a lot in terms of time. You get snappier at it. There is no reason for it to decline, in my mind. It’s an important part of the way I operate now James, general practitioner
Josh, like other participants, reflected that change became well established over time underpinned by a person-centred approach.
The course has transformed how I talk to patients. The principles of being equal partners, (and the concept of) self-empowerment are well grounded in the course which has continued to form my practice till now. The skills I picked up were invaluable, and over time, continue to develop and strengthen. Josh, consultant physician
The aim of empowerment education is to facilitate self-empowerment in people with diabetes. Our research shows that there are also positive outcomes for clinicians who move from fixer to facilitator. This is attributed to the experiential nature of the course, through which participants grow relationships based on the philosophy of Rogers’ Person-Centred Approach.15 Participants demonstrated this philosophy using communication skills and a five-step empowerment consultation structure that facilitates reflection and increases self-autonomy in people with diabetes.12 The changes took place deep within the being of the participants who came to know that not only do patients have the capacity to grow and fulfil their potential but so too, do they. Rogers described this active, more congruent state as encompassing the ideal of the ‘fully functioning person’.23
Participants made references to the day-to-day heavy burden of being a ‘fixer’ and needing to find solutions. This is pathognomonic of the Rescuer role on the Drama Triangle described by Karpman.24 The Triangle describes inauthentic relationships in which personal responsibility is lacking. The antithesis to Karpman’s triangle is the Winning Triangle described by Choy25 where authenticity and personal responsibility are key to successful collaborative relationships. Studies have demonstrated clinicians’ solutions alone may be at variance with peoples’ needs26–28 which can further increase clinicians’ burden. Viewing this vicious circle through the lens of the Drama Triangle it is conjectured that clinicians engaging with patients through the Rescuer role could increase risk of burnout, characterised by emotional exhaustion, depersonalisation, and a sense of failure.29 In contrast, participants described how engaging more congruently, and respectfully responding in the Caring role on the Winning Triangle, changed them from a disease-centred approach (fixer) to a person-centred approach (facilitator). This reduced their sense of personal responsibility for the outcomes of self-management as they learned to respect and accept the ownership of diabetes self-management in the world of their patients.
A recent study observed the responses from clinicians who had self-reported empathic concern and perspective taking traits.30 The authors found clinicians when faced with emotional content during a consultation tended to respond with advice and information rather than with empathic emotional communication. One possible explanation may be the ethos that pervades medicine and associated professions of the traditional medical model of fixing, or, as the authors discuss, empathic clinicians may internalise the patient’s distress and seek to fix it rather than engage with it. Rogerian person-centred theory would hypothesise that such clinicians are not demonstrating empathic understanding of their patients’ emotions but are in an acute state of incongruent awareness, engaging through a Rescuer role on the Drama Triangle. Such a response also has the hallmark of clinician countertransference31 which would explain why they ‘received fewer patient expressions of emotions’.
Becoming a facilitator, reorientated participants from ‘value incongruence’ towards ‘value congruence’. This was defined in earlier research as alignment between individuals’ values and the values held by the organisations they worked within.32 In the present case, this means participants being able to work within their own philosophy rather than the philosophy of traditional training and/or the environment they work in. This is represented by the theme ‘Being how I want to be’, a key characteristic of Rogers’ notion of the ‘fully functioning person’.23 The authors speculate that this, in the long-term, may reduce the risk of stress and burnout.
A strength of this study was the diversity of experienced clinicians who reported personal and professional benefit from the course. Not all clinicians who had participated on the course were contactable partly because details had become out of date over time. As a result, two thirds of participants had undertaken the course in the previous two years. This may be a limitation because non-responders may have felt unchanged by the course, although this is not borne out by the positive evaluations received from clinicians who did not agree to participate. This potential limitation is mitigated by the qualitative nature of the study, which makes no claims to generalisability and is thus less prone to sampling bias.
Future research is required in three areas. First, to investigate which aspects of empowerment education within relationships grounded in person-centred philosophy might mitigate clinician burnout. Secondly, to assess how person-centred philosophy, skills and five-step empowerment model could be introduced more widely into clinical practice. Thirdly to evaluate the impact of this step-change in clinician practice on people with diabetes. In conclusion this study demonstrates that empowerment education has the potential to affect a change in perspective in participants’ approach to people with diabetes. Becoming a facilitator may reduce the personal burden of responsibility for patient self-management outcomes.
A philosophy based on the Person-Centred Approach, and an empowerment consultation structure that recognizes the patient perspective including psychosocial barriers to diabetes self-management, can transform the facilitation of self-management and behaviour change. It may also benefit professionals in a way which protects against burnout.
Florence Findlay-White: Conceptualisation, Methodology, Investigation, Analysis, Writing – Original Draft preparation.
Tim Dornan: Conceptualisation, Methodology, Investigation, Analysis, Writing – Original Draft preparation, Supervision.
Mark Davies: Conceptualisation, Analysis, Writing – Reviewing and Editing, Supervision.
Alan Archer: Conceptualisation, Analysis, Writing – Reviewing and Editing.
Anne Kilvert: Conceptualisation, Analysis, Writing – Reviewing and Editing.
Charles Fox: Conceptualisation, Analysis, Writing – Reviewing and Editing.
Since the underlying data are personally very sensitive to participants and the risk of deductive disclosure is unacceptably high, we are unable to publicly share the data. The ethics committee granted ethical approval without questioning this. Readers may apply for access to the data by applying in writing to the first author, by email florencefindlaywhite@gmail.com identifying themselves by name and position held. In keeping with our commitment to preventing inappropriate deductive disclosure, the condition for access is that participants whose data are present in any released material should know who is asking for access to the data and give written approval to release.
Queen's University Belfast: Dataset for “From Fixer to Facilitator”. https://doi.org/10.17034/abba6744-4cb1-45f1-9c5a-2b76588b6d4e33
This project contains the following extended data:
- Letter to participants (pdf and docx)
- Interview guide (pdf and docx)
- Online survey questions (pdf and docx)
Data are available under the terms of the Creative Commons Attribution 4.0 International license (CC-BY 4.0).
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Is the work clearly and accurately presented and does it cite the current literature?
Yes
Is the study design appropriate and is the work technically sound?
Yes
Are sufficient details of methods and analysis provided to allow replication by others?
Partly
If applicable, is the statistical analysis and its interpretation appropriate?
Yes
Are all the source data underlying the results available to ensure full reproducibility?
No source data required
Are the conclusions drawn adequately supported by the results?
Partly
References
1. J S, T C S, T D, T B, et al.: Our language matters: Improving communication with and about people with diabetes. A position statement by Diabetes Australia.Diabetes Res Clin Pract. 2021; 173: 108655 PubMed Abstract | Publisher Full TextCompeting Interests: No competing interests were disclosed.
Reviewer Expertise: Psychological aspects of diabetes
Is the work clearly and accurately presented and does it cite the current literature?
Yes
Is the study design appropriate and is the work technically sound?
Yes
Are sufficient details of methods and analysis provided to allow replication by others?
Partly
If applicable, is the statistical analysis and its interpretation appropriate?
Yes
Are all the source data underlying the results available to ensure full reproducibility?
Partly
Are the conclusions drawn adequately supported by the results?
Yes
References
1. Funnell M: Patient empowerment: What does it really mean?. Patient Education and Counseling. 2016; 99 (12): 1921-1922 Publisher Full TextCompeting Interests: No competing interests were disclosed.
Reviewer Expertise: Empowerment-based education and training for health professionals and people with diabetes.
Alongside their report, reviewers assign a status to the article:
Invited Reviewers | |||
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